论文标题

艾滋病毒的监视,污名和社会技术设计

Surveillance, Stigma & Sociotechnical Design for HIV

论文作者

Liang, Calvin, Hutson, Jevan, Keyes, Os

论文摘要

在线约会和连接平台从根本上改变了人们对性和爱情的日常习俗,但与较旧的社会和医疗核能规范存在紧张关系。对于艾滋病毒的患者而言,这种情况尤其如此,他们经常因其地位而受到污名化,监视,排斥和监禁。为了使艾滋病毒的“工作”的私密平台的努力经常专注于用户互动和披露一个人的艾滋病毒状况,但在调节性行为和国家参与酷儿生活中起作用的结构力量既有作用。为了促进这些力量和这种参与,我们分析了通过对49个当前平台的内容分析来设计HIV披露时采用的亲密平台的方法。我们认为,关于艾滋病毒是谁或不关心的刻板印象的隐含刻板印象,以及在设计数据披露时未能考虑国家做法,为艾滋病毒阳性和其他边缘化的人带来了严重的风险。尽管我们没有灵丹妙药的披露和风险之间的张力,但我们指出了设计的自下而上,公共和酷儿的方法,以使这种张力更易于安全导航。

Online dating and hookup platforms have fundamentally changed people's day-to-day practices of sex and love-but exist in tension with older social and medicolegal norms. This is particularly the case for people with HIV, who are frequently stigmatized, surveilled, ostracized and incarcerated because of their status. Efforts to make intimate platforms "work" for HIV frequently focus on user-to-user interactions and disclosure of one's HIV status but elide both the structural forces at work in regulating sex and the involvement of the state in queer lives. In an effort to foreground these forces and this involvement, we analyze the approaches that intimate platforms have taken in designing for HIV disclosure through a content analysis of 49 current platforms. We argue that the implicit reinforcement of stereotypes about who HIV is or is not a concern for, along with the failure to consider state practices when designing for data disclosure, opens up serious risks for HIV-positive and otherwise marginalized people. While we have no panacea for the tension between disclosure and risk, we point to bottom-up, communal, and queer approaches to design as a way of potentially making that tension easier to safely navigate.

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